Salvatore Iaconesi’s extraordinary TEDx Transmedia talk featured on CNN


The incredible personal story of artist Salvatore Iaconesi using digital and social to fight brain cancer has gained worldwide attention and engaged people globally in a mission to help him find a cure.  

This week his talk at TEDx Transmedia 2012 was featured on CNN.com and inspired a lively debate in the comments section which led to a second article where he responded to eight of the significant questions asked about his methods and aims. 

Check out the two CNN articles, the first featuring his story in his own words:

http://edition.cnn.com/2012/11/25/opinion/iaconesi-cure-open-source/index.html

http://edition.cnn.com/2012/11/26/opinion/iaconesi-questions/index.html


Video - Salvatore Iaconesi at TEDx Transmedia 2012 - ‘My Open Source Cure’


       

Thirty-nine-year-old Salvatore Iaconesi has been diagnosed with brain cancer but is seeking a cure in an unconventional and radical way, by uploading his medical data as an open source project inviting responses from around the world. Uncomfortable with being ‘replaced’ by his dehumanising clinical records, he cracked their codes and on September 10 (2012) converted them into open formats to share online.

Italian robotic engineer and open source artist Salvatore, who was a surprise speaker at TEDx Transmedia 2012 in Rome on September 28, has invited the world to respond to his CT scans, MRIs, lab notes and glioma diagnosis in whatever way they want, in a bid to crowd-source a cure that is not just bodily but also heals his spirit and mind. He’s attracted hundreds of thousands of responses since it was launched in mid-September. Doctors have offered medical advice, artists have made films, and all have contributed to Salvatore’s strategy for overcoming cancer. Watch the video to hear his inspiring story. 

Salvatore’s website: http://artisopensource.net/cure/


My Open Source Brain Cancer Cure: The inspirational story of surprise TEDx Transmedia speaker Salvatore Iaconesi


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Thirty-nine-year-old Salvatore Iaconesi has been diagnosed with brain cancer but is seeking a cure in an unconventional and radical way, by uploading his medical data as an open source project inviting creative responses from around the world.

Uncomfortable with being ‘replaced’ by his dehumanising clinical records, he cracked their codes and on September 10 (2012) converted them into open formats to share online with everyone.

Salvatore, who was a surprise speaker at TEDx Transmedia 2012 in Rome on September 28, has invited the world to respond to his CT scans, MRIs, lab notes and glioma diagnosis in whatever way they want, in a bid to find a cure that is not just bodily but also heals his spirit and mind.  

       

So far, Salvatore has had more than 60 doctors offer practical scientific advice, 35 videos made using images of his tumour, 600 poems written, 15,000 testimonials shared and 50,000 different strategies for cancer cure - from magic to holidays to Chinese medicine. His tumour has even been given a ‘second life’ in the Thingiverse.

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An image of Salvatore’s tumour which Patrick Lichty reconstructed from his MRI data using medical imaging software.

Thanks to the responses from around the world Salvatore says he’s been able to understand his illness in a more human way than his medical records allowed and develop a strategy to confront his cancer, which he has named his ‘Open Source Cure.’ 

"No one commiserates me,” he said.

"Everyone is part of a human society and not having to deal with a patient or a diseased person. This, I feel, is a good use for technology. 

“I will progressively publish all the replies I will receive, using open formats, so that anyone with my same disease will be able to benefit from the solutions I will find. 

“Grab the information about my disease, if you want, and give me a cure: create a video, an artwork, a map, a text, a poem, a game, or try to find a solution for my health problem. Artists, designers, hackers, scientists, doctors, photographers, videomakers, musicians, writers. Anyone can give me a cure.”

Salvatore, who is a data artist, musician, hacker, electronics engineer and TED fellow, opened the final Mindshifter session of TEDx Transmedia 2012 with a surprise talk that visibly moved and inspired everyone in the auditorium at the MAXXI Museum in Rome. 

If you want to create a cure for Salvatore then visit the My Open Source Cure website to find the data and then send it to info@artisopensource.net